Dravet Syndrome Ireland is a volunteer-run organisation established by parents to support the community of families affected by Dravet Syndrome and other severe genetic epilepsies in Ireland. We are here to provide support and share information.
Our misson
Our mission is to support families and improve outcomes for individuals affected by Dravet Syndrome and other complex genetic epilepsies in Ireland.
What we do
From entitlements to the health and education systems, there is much to navigate with a child with a diagnosis of severe genetic epilepsy. We are here to share information and provide support.
What is Dravet Syndrome
Other Genetic Epilepsies
Resources and Support
Events
Gallery
Membership
Managing your Child’s Seizures
What is SUDEP
