On 25th May we came together with parents, caregivers, researchers and clinicians for our 2024 Symposium at the Lucan Spa Hotel. It was a day filled with insightful discussions, valuable talks from guest speakers and time to catch up with other parents from our supportive community. This event was kindly supported by UCB, HRB and Futureneuro.
Symposium for Parents and Caregivers 2024
‘Creating Connections’ Family Event 2023
This year our family event ‘Creating Connections’ was held in Lucan Spa Hotel on 10th June in collaboration with FutureNeuro (RCSI), supported by HRB and Biocodex. We had a fun-filled day with information on latest research and treatments in Dravet Syndrome and other complex epilepsies as well as activities for all the family. Families, researchers and clinicians came together to share their experiences and expertise.
Family Day Out 2022
We had an amazing day coming together as a community at the Avon in Blessington. We had a fantastic experience for all the family with rock-climbing, zip-lining, archery, kayaking, and of course a delicious lunch. Make sure to sign up to our mailing list to keep up to date with our latest news and events.
