Family and Caregiver Associate Membership
Family and caregiver associate membership is open to residents of Ireland who have an immediate family member with a diagnosis of Dravet Syndrome or other rare genetic epilepsy. Our membership is also open to full time caregivers for people with rare genetic epilepsies.
By becoming a member of Dravet Syndrome Ireland, you are joining with families like yours who are living with Dravet Syndrome and other forms of genetic epilepsy. Dravet Syndrome Ireland is in contact with similar organisations across Europe to learn about the latest in research and medicines and the advances in therapies. We are a member of the Dravet Syndrome European Federation and are involved in their current European wide projects.
Members can share in the latest developments and research. We also organise virtual educational events and days out for families and caregivers to meet and share experiences.
Only by growing our membership can we benefit each other and support all families living with Dravet Syndrome and other genetic epilepsies.
Please read our Privacy Policy in order to understand how your information is used and stored by Dravet Syndrome Ireland.
