As a charity seeking donations from the public, Dravet Syndrome Ireland aims to comply with the Statement of Guiding Principles for Fundraising and the Guidelines for Charitable Organisations on Fundraising from the Public.

 Our pledge is to treat all our donors with respect, honesty and openness.

 We commit to being accountable and transparent so that donors and prospective donors can have full confidence in Dravet Syndrome Ireland.

 Dravet Syndrome Ireland assures our donors that we will effectively apply your gifts to us for their intended purposes.

 We commit that you, our donors and prospective donors will:

•  Be informed of the organisation’s mission, and of the way the organisation intends to use donated resources.

• Be informed of the identity of those serving on the organisation’s governing board, and that the board will exercise prudent judgement in its stewardship responsibilities.

• Have access to the organisation’s most recent financial statements.

• Be assured your gifts will be used for the purposes for which they were given.

• Receive appropriate acknowledgement and recognition.

• Be assured that information about your donation is handled with respect and with confidentiality to the extent provided by law.

• Expect that all relationships with individuals representing the charity will be dealt with professionally.

• Be informed whether those seeking donations are volunteers, employees of the organisation or hired third party agents.

• Have easily available the agreed procedures for making and responding to complaints.

• Have the opportunity for any names to be deleted from mailing lists. Dravet Syndrome Ireland mailing lists are not shared with third parties.

• Receive prompt, truthful and forthright answers to questions you might have of the organisation.

What to do if you have feedback

If you do have a comment about any aspect of our work, you can contact Dravet Syndrome Ireland in writing or email. In the first instance, your comment will be dealt with by a member of our board of directors. Please give us as much information as possible and let us know how you would like us to respond, providing relevant contact details.

Address: Dravet Syndrome Ireland, Garrarus, Tramore, Co Waterford, X91E3P2

Email: info@dravetsyndromeireland.org

What to do if you wish to make a complaint

If you wish to make a complaint, please consult our Complaints Policy, available here.