We are delighted to have so many fundraising initiatives for Dravet Syndrome Ireland in 2024. We are a small volunteer-run organisation. Our mission is to support families and improve outcomes for individuals affected by Dravet Syndrome and other complex genetic epilepsies in Ireland. Fundraised monies allow us to support our community in line with our mission in three main areas; Support, Education and Advocacy and Awareness. To date we have used funds to provide these supports and we will continue to expand on these with additional funds raised this year. We also use funds to ensure we are carrying out all our obligations as a charity and a company.

If you would like to start a fundraising campaign in aid of Dravet Syndrome Ireland please contact us, we would be delighted to hear from you.